As Louise discussed in her recent post on closed records,
there are a number of legal restrictions that we have to navigate when
providing access to the records in our care, such as the Data Protection Act (1998) and NHS Scotland guidance on records of deceased individuals. Not every access concern is legislated though, and this week Alice explains some of the thinking behind our procedures.
A volume of case notes from the early 20th century. These record not just medical information, but personal and familial information too. (LHB44/20/1) |
The 19th and early 20th century
case notes and patient registers that LHSA hold are a valuable resource for
family historians, and we often receive enquiries relating to a specific
patient. Where possible, if we find information on an individual we always aim
to send photos of any relevant records to the enquirer. It is our general
practice to block out or redact identifying information about any other
patients when providing these photos, and understandably, this can seem strange
to some researchers. Why bother redacting information about someone who has
long been dead?
The case notes for this patient fall comfortably into the closure periods, but we've still taken measures to protect the patient's identity. (LHB44/20/1) |
At a recent conference on the societal impact of
records, I heard Dr Joanne Evans of Melbourne University, Australia,
speak about how her feelings towards ‘open’ records have changed somewhat in
recent years. The increased media coverage of historical abuses and the
resulting inquiries has reminded us all that ‘records subjects’ are much, much
more than this epithet suggests. The passing of time – say, 100 years - between
a record being created and that same record becoming ‘open’ can easily lead us
to disconnect the items we deal with from the lives they represent, but as
these issues have highlighted, these items weren’t created in a vacuum. Although
the subject of a record may have passed away a long time ago, the records
themselves can represent a part of that person’s life, and – to some extent – live on as an avatar for them.
Another talk at the conference brought
this even closer to home. In his discussion on the impact of the Public Records
(Scotland) Act of 2011, Dr Hugh Hagan of the NRS noted that records made by and
about us throughout our lives help us to answer the question of “how do you
know who you are?”, in that they allow us to identify and describe ourselves
and our relationships to others. With that in mind, it is important that we are
mindful of how we as archivists treat such records. Dr Hagan recounted how one
victim told the Shaw Inquiry on historical abuse that he had struggled to
obtain records about his time in care, and when he did receive them, they were
incomplete or had been so poorly managed that crucial contextual information
was lost. He remarked to the Shaw inquiry that he felt the lack of respect the
records had been shown reflected the lack of respect he had been shown as a
young person in care. As the repository for historically important local
records of NHS hospitals, LHSA exists almost as a branch of NHS Lothian, and we
therefore need to consider how our treatment of and attitudes towards patient
records reflects on them.
A case of 'congenital idiocy', brought about by "a fright from a mad woman" during pregnancy (LHB7/51/59) |
Another factor that has to be
considered is how much language – and particularly language around mental health
– has changed since some of the records were first created. It’s not uncommon
to find a 19th century patient described as “a profound idiot”
or “dull and stupid”, or to hear fantastical and salacious accounts of how
insanity manifested itself and what had instigated a patients admission to an
asylum. While we can certainly glean a lot from such accounts – not least an
understanding of how our attitudes have changed – it is vital we remember that
these records are not created, kept, preserved and made available for our
entertainment. They contain and reflect people’s lives, and we must never lose
sight of the person in our search for the information.
No comments:
Post a Comment